This fall, CSL employees continued the annual tradition of cycling alongside the Alpha-1 Antitrypsin Deficiency patient community in Cape Cod during the Escape to the Cape Bike Trek.
The Alpha-1 Foundation’s “Riding for a Reason” event every September invites participants to cycle over three days along scenic coastal routes in Cape Cod, Massachusetts. The bike trek raises awareness and funds to support research into Alpha-1, a rare disease that impacts the lungs and liver. Patients often have issues with breathing and some require assistive oxygen.
Phil Klara, an Associate Director in Product Marketing, says participating in the trek helps him feel connected to the Alpha-1 community.
“Alpha-1 too often leads to reduced lung function with limited activity, but this group of Alphas remain determined to make a difference and change the course of disease,” he said. “Like most, I rode with an Alpha Angel patch in recognition of those less fortunate. It’s important to honor those who came before, but I’m hopeful that the foundation, together with all those that support, can make a real difference in the months and years ahead.”
Those who cycled with Team CSL also felt inspired by Dee, an Alpha-1 patient, who cycled 103 miles this year.
“Having Alpha 1 has slowed me down but, I guess it’s in my nature to not let it stop me,” she said. “Of course, there are limitations to what I can do. I rode my personal best, 103 miles and proud of it. I rode not just for myself but for all Alpha patients.”
Participant Emma Hatcher, CSL’s Director of U.S. Advocacy, said the trek demonstrates what Alpha-1 patients value and how they support each other.
“This event gives us the opportunity to connect with patients on a personal level and to see the Alpha-1 Foundation in action—working every day on behalf of the community,” she said.
