This weekend, the rare disease community suffered a terrible loss with the tragic passing of Vicki Modell. As the co-founder of the Jeffrey Modell Foundation, Vicki spent decades advocating on behalf of children and families impacted by primary immunodeficiency and through her tireless efforts countless numbers of people benefited from early diagnosis, access to treatments, patient support and much, much more. To the Modell family, we thank you for all you have done in support of this community and we send our deepest condolences for your loss.
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Health authorities endorse an approach called patient blood management (PBM) to preserve and safeguard a patient’s own blood while promoting patient safety and empowerment.
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