At CSL, Rare Disease Day shines all month long, CSL CEO Paul Perreault said in video shared with more than 32,000 employees this week.
Perreault, who has led CSL for 10 years, said Rare Disease Day reminds us to listen to what patients are saying about what it’s like to live with rare conditions.
“Listen to their stories and gain insights from their lived experience,” he said.
In a show of support for the rare disease community on February 28, CSL will participate in the global chain of lights to illuminate landmarks in blue, green, pink and purple, the colors of Rare Disease Day. This year, the company plans to light up Philadelphia’s Boathouse Row and use sustainable energy in Germany to light up Marburg’s Castle.
CSL is a global biotech that researches and manufactures medicines for patients with rare diseases, such as hemophilia and immunodeficiencies. Thanks to CSL Behring’s growth and the recent acquisition of CSL Vifor, CSL’s commitment to the rare disease community continues to grow.
“We’re expanding the number of rare disease patients we treat,” Perreault said.