Dr. Arianna Kitzinger is a Hereditary Angioedema (HAE) patient, an associate professor of Pedagogy at the University of Sopron in Hungary and a member of the board of HAE Hungary.
In this video interview, she shares what it was like to grow up with HAE in the 1970s and 1980s. She watched treatment options evolve but also missed a lot of school and work and felt stigmatized by HAE, which causes unpredictable and potentially fatal swelling attacks.
What is her advice to someone newly diagnosed with HAE?
“It would be to never give up, because there are still unexpected solutions that we don’t know about. Please keep trying. Try to persist in your dreams and ambitions. Because with good doctors and good medication, everything is possible."
Watch the full interview above.