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Turning the Light on Rare Disease Day

Are you joining the Global Chain of Light for Rare Disease Day? Learn how to take part from home.


“Light” has multiple meanings and all of them lend themselves to Rare Disease Day: Light is something that illuminates, makes it easier to see and ignites.

As darkness falls on Monday, February 28, the rare disease community will switch on lights in hues of pink, green, blue and purple to raise awareness for the 300 million people across the world who live with 7,000 rare diseases. In past years, monuments including the Empire State Building, the Eiffel Tower and the Leaning Tower of Pisa, have been illuminated on Rare Disease Day.

CSL Behring, a global biotech that develops medicines for people with rare and serious diseases, plans to light up trees outside our manufacturing site in Kankakee, Illinois. Close to our corporate headquarters in King of Prussia, Pennsylvania, we also plan to light up Philadelphia’s Boathouse Row in the Rare Disease Day colors.

And this year, everyone can join the Rare Disease Day Global Chain of Light. Here’s how to participate:

Fill your home with light at 7 p.m. in your time zone on the evening of February 28, Rare Disease Day organizers recommend. They provided this colorful video to play: Light Up at Home video

You also can take and share a photo of yourself illuminated by Rare Disease Day colors.

See our patients showing their colors in the video above.