After a successful 75 years, the National Hemophilia Foundation became the National Bleeding Disorders Foundation last week, a name change that better describes the organization’s ongoing mission to represent patients who live with all varieties of bleeding disorders.
While the nonprofit was founded for hemophilia patients, it evolved to also advocate for people who have conditions such as von Willebrand Disease, rare factor deficiencies, platelet disorders and more, according to a news release. NBDF CEO Dr. Len Valentino welcomed the new, inclusive name.
“We think that this really embraces what we’re going to offer into the future by bringing everybody in and offering them something. No matter what disorder you have, you will find a home in the National Bleeding Disorders Foundation,” Valentino said.
Bleeding disorders, such hemophilia or von Willebrand, endanger a person’s health because the conditions cause problems with the way blood coagulates or clots. Without treatment, patients are at risk of serious bleeding and related health problems.
Officials announced the name change at the 2023 Bleeding Disorders Conference in Maryland. Here are five things to know about the NBDF:
- The NBDF will increase its commitment to health equity and diversity. “This rebrand aims to address concerns around diversity, inclusion, and equity to ensure every person and family facing an inheritable blood or bleeding disorder has access to the advanced care and support they need — regardless of gender, age, ethnicity, location, or socioeconomic background — so they can achieve their highest level of health,” the NBDF said.
- The organization will continue “providing a powerful combination of research, education, and advocacy,” supporting 50 chapters across the country, investing in research, increasing access to health care and educating families and clinicians.
- The NBDF wants to use its resources and networks to advocate for an expanding number of inheritable blood and bleeding disorders, including those that currently lack a national support and advocacy network.
- In addition to the new name, the NBDF has a new visual identity, logo and social media handles: Follow the NBDF on:
X, formerly known as Twitter: @NBD_Foundation and @NBDFespanol
- A change in NBDF’s leadership is also underway following an announcement in May that Valentino, a hematologist with decades of clinical experience, plans to retire from the CEO job. He has led the organization for more than three years. “During this time, we have planted the seeds that I am hopeful will sprout into the vision of a world without inherited blood disorders. I believe this is the right time for a new leader to continue the journey,” he said in the statement.