Skip to main content

Watch: What Makes the Rare Disease Community Unique?

Hear CSL CEO Paul Perreault’s answer in this one-minute video.


In honor of Rare Disease Day on February 28, we asked Paul Perreault, Chief Executive Officer and Managing Director of CSL Limited, three questions, including "Why Is the Rare Disease Community Unique?" 

Perreault said patients and caregivers distinguish themselves by their self-advocacy and the way they empower themselves with knowledge.

“They continue to come back and actually bring information to healthcare providers because they’re the ones that understand what they’re living with each and every day,” Perreault said. “This is the nuance with rare disease.”

Hear his full answer on the video above.

Perreault also answered these questions. Click on the links to hear his answers.

Why should young scientists consider a career in rare disease?

What would you say to a newly diagnosed rare disease patient?