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Hemophilia From a Fresh Angle

If you didn’t catch the Portraits of Progress exhibit in New York City, it’s not too late. It’s online and the photographs will be on view at an upcoming National Hemophilia Foundation conference.

A collage of black and white photos that are part of the Portraits of Progress exhibit featuring lives touched by hemophilia B

The black and white photographs in the Portraits of Progress exhibit tell a wide-ranging story that includes patients, of course, but also caregivers, health care providers and a gene therapy researcher.

The photo story, created by acclaimed photographer Rankin and sponsored by CSL Behring, chronicles the experiences of Dan, a senior who feels awed by the medical advances now available to him and his young grandson, who also has the bleeding disorder. And the exhibit, which can be viewed online, also gives a voice to Sue, a nurse, who spent 25 years working with hemophilia patients only to decide she would stay involved with the community following her retirement.

Forging ahead toward a new era, the exhibit features Ying Poi, a scientist working on potential gene therapy treatments.

“As a scientist, my hope for the hemophilia community will be that there will be many more different treatment options available to them, such as gene therapy, so they can pick and choose what’s suited for them,” she said.

A team at CSL Behring, a global biotech business, is studying the possibility of gene therapies, which could potentially further transform the lives of people with hemophilia. Today the disease typically requires regular infusions to prevent excessive bleeding.

The Portraits of Progress photos debuted in New York City at a Crosby Street gallery in June. The exhibit will go on the road when it travels to the National Hemophilia Foundation’s Bleeding Disorders Conference in Houston later this month. Visit the CSL Behring booth at the event, which begins August 25.

See the Portraits of Progress digital gallery.