CSL Behring yesterday joined with the global community of rare disease patients and advocates to light up famous landmarks to honor Rare Disease Day 2022. In Philadelphia, the 19th century boathouses of Boathouse Row flashed in pink, blue, purple and green as darkness fell on the banks of the Schuylkill River.
Boathouse Row, where rowing teams have long launched from, is near King of Prussia, Pennsylvania, where global biotech CSL Behring has its headquarters. CSL Behring, with more than 25,000 employees worldwide, develops and manufactures medicines for people who have rare diseases, such as primary immunodeficiency and hemophilia. Though they’re called “rare,” researchers have identified about 7,000 rare diseases that affect an estimated 300 million people worldwide. Many conditions lack effective treatments.
Colorful lights honoring Rare Disease Day also switched on in Kankakee, Illinois, at CSL Behring’s manufacturing plant. And in Marburg, Germany, Historic University glowed in pink, purple, green and blue thanks to a partnership among the university, CSL Behring and University and Marburg City Marketing. In Marburg, where the company has a large presence, a new CSL Behring R&D facility is due to go online later this year.
Elsewhere in the world, iconic structures such as the Tokyo Tower in Japan and the Burj Khalifa, a skyscraper in Dubai, United Arab Emirates, were illuminated for the annual occasion.
In addition to the public displays, Rare Disease Day organizers encouraged supporters to light up at home and extend the global chain of light. Watch a video to see how patients shared their colors this year.