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Video: How to Find the Right Diagnosis

Rare diseases are often difficult to diagnose. We asked several patients for advice.


Rare disease patients can go years without a proper diagnosis. With that in mind, we asked several patients for their advice on what those searching for a diagnosis can do to find the right answers. Traci Davies, who is living with a primary immune deficiency, suggests closely tracking symptoms and reporting detailed records to doctors.

For more advice from rare disease patients, check out the video.