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What Kids Need to Know

See Machelle’s Promising Tips for helping a child be their own rare disease advocate.



For a child with a rare disease, learning about their condition can be just as important as understanding reading and math. Machelle Pecoraro is living with hereditary angioedema (HAE), a condition she shares with her son, Trent, that can cause chronic, painful swelling in different parts of the body. It’s important for children with a rare disease to know as much as they can about their condition so they can inform others about what they need to stay healthy. See more of Machelle’s tips for helping children empower themselves in the video above.

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