Below is a list of questions that can be important to ask before deciding to participate:

• What is the purpose of the study?
• Who is going to be in the study?
• Why do researchers believe the treatment being tested may be effective?
• Has the treatment been tested before?
• How do the risks, possible side effects, and potential benefits in the study compare with my/my child’s current treatment?
• What kinds of tests and treatments are involved?
• How might this trial affect my or my child’s daily life?
• Will I be able to continue to work during the trial?
• How long will the trial last?
• Will hospitalization be required?
• Who will pay for the treatment?
• Will I be reimbursed for expenses such as childcare, transportation, time away from work, etc.?
• What type of long-term follow up care is part of this study?
• How will I know that the treatment is working?
• Who will be in charge of my care during the trial?
• Will results of the trial be provided to me?